There is disintegrated storage of medical records of a patient. There is also no proof of ownership over personal data, which is susceptible to the unethical circulation of sensitive information by the corporations holding the data in a centralized manner.
It is tedious for a researcher to gain access to the data in trading AI models and the research progress using the data isn't updated and publicised to the benefactors.
The problem is obtaining data from the medical systems to create a real-world, dynamic machine learning model. The data that needs to be accessed is being bought by 3rd-party companies that are making a profit out of patient's data and health records which breach the privacy of patients with a lack of taking consent for using the data.
#Lack of Direct to Consumer in obtaining data
There are no existing solutions that incentivize users to share their data in research. The 3rd-parties and medical conglomerates are profiting off the patient's data than the patient getting the benefits for sharing their personal data.